Who is conducting the study?
This study is being conducted by a team of research scientists at the Oklahoma Medical Research Foundation and collaborators at the University of Oklahoma. The team consists of experts in oral medicine, ophthalmology, rheumatology, autoimmunity and genetics.
What does participation in the Sjögren’s study involve?
- Completion of questionnaires regarding past medical history and symptoms of Sjögren’s syndrome and other autoimmune diseases.
- Participation in a half-day clinical evaluation to assess the extent of oral, ocular and rheumatologic manifestations of Sjögren’s syndrome.
- Authorization of researchers to collect medical records related to the diagnoses and treatment of patients with Sjögren’s syndrome.
Will my information be kept confidential?
Yes, as required by the Privacy Act, all information is kept strictly private and confidential. The Oklahoma Medical Research Foundation will retain all data collected.
What is the compensation for participation?
An ophthalmologist, rheumatologist, and oral medicine expert will examine volunteers who qualify for the study and will perform specialized tests. The results of certain clinical and laboratory tests will be available that may be useful to a participant. These medical evaluations, provided at no cost to the volunteer, are worth approximately $2,600. Patients will be provided with the results of these evaluations and are encouraged to review them with their primary care physicians. In addition, all individuals who complete enrollment in the study will receive nominal monetary compensation for participation.