By the time doctors gave her condition a name, Sandy Roark had grown almost too tired to care. Just standing or walking a few feet would put her in bed for hours or days. She had forgotten what it was like to feel good. When Sandy was diagnosed with paroxysmal nocturnal hemoglobuinuria, or PNH, an incurable blood disorder, the disease had robbed her of all her energy and put her at risk for developing deadly blood clots. She later learned that, if untreated, PNH might take her life, as well. She thought her life was over. But Sandy’s story had a happy ending, thanks to a one-of-a-kind medication developed by two OMRF researchers. Sandy’s story unfolds here.